The Inspiration
The spark for Inclusive Sol ignited in the wake of a moment that forever altered the course of my life: the day we received the earth-shattering diagnosis for my son Elijah Sol, just two weeks past his first birthday.
In that moment, we were confronted with a reality we had never fathomed. The doctors delivered the news with a weight that seemed to crush the air from the room. They spoke of spastic quadriplegic cerebral palsy, significant hypertonia, hyperreflexia, use of splints, unevenness that would require medication or possibly surgery, primitive reflexes retained, and the heightened risk of epilepsy. Amidst it all, they offered practical advice – ensure wide doorways for wheelchair access at home and he should be able to talk with therapy. It was an avalanche of information, a wave of emotions.
And then, with the weight of the diagnosis, we were sent home, left to grapple with the enormity of it all empty-handed. Where do we even begin? It was a question that echoed through my mind: Where do I find my anchor?