Mission
To provide support and guidance for parents and caregivers of children with cerebral palsy as they navigate caring for a child with a disability.
Vision
Inclusive Sol fosters inclusivity and equitable access for families of children with disabilities, particularly those navigating the challenges of cerebral palsy. We envision a world where these families find solace, support, and empowerment within our community. Through collaborative efforts, we aim to break down barriers and create a more inclusive society where everyone can access the resources and opportunities they deserve.
The Inspiration
The spark for Inclusive Sol ignited in the wake of a moment that forever altered the course of my life: the day we received the earth-shattering diagnosis for my son Elijah Sol, just two weeks past his first birthday.
In that moment, we were confronted with a reality we had never fathomed. The doctors delivered the news with a weight that seemed to crush the air from the room. They spoke of spastic quadriplegic cerebral palsy, significant hypertonia and hyperreflexia. Then they mentioned the use of splints, unevenness that would require medication or possibly surgery. He had primitive reflexes retained, and the heightened risk of epilepsy. Amidst it all, they offered practical advice – ensure wide doorways for wheelchair access at home and he should be able to talk with therapy. It was an avalanche of information, a wave of emotions.
And then, with the weight of the diagnosis, we were sent home, left to grapple with the enormity of it all empty-handed. Where do we even begin? It was a question that echoed through my mind: Where do I find my anchor?
