About

Mission

To provide support and guidance for parents and caregivers of children with cerebral palsy as they navigate caring for a child with a disability. 

Vision

Inclusive Sol fosters inclusivity and equitable access for families of children with disabilities, particularly those navigating the challenges of cerebral palsy. We envision a world where these families find solace, support, and empowerment within our community. Through collaborative efforts, we aim to break down barriers and create a more inclusive society where everyone can access the resources and opportunities they deserve.

 

The Inspiration

The spark for Inclusive Sol ignited in the wake of a moment that forever altered the course of my life: the day we received the earth-shattering diagnosis for my son Elijah Sol, just two weeks past his first birthday.

In that moment, we were confronted with a reality we had never fathomed. The doctors delivered the news with a weight that seemed to crush the air from the room. They spoke of spastic quadriplegic cerebral palsy, significant hypertonia and hyperreflexia. Then they mentioned the use of splints, unevenness that would require medication or possibly surgery. He had primitive reflexes retained, and the heightened risk of epilepsy. Amidst it all, they offered practical advice – ensure wide doorways for wheelchair access at home and he should be able to talk with therapy. It was an avalanche of information, a wave of emotions.

And then, with the weight of the diagnosis, we were sent home, left to grapple with the enormity of it all empty-handed. Where do we even begin? It was a question that echoed through my mind: Where do I find my anchor? 

WHY

In that moment of shock and grief, Inclusive Sol was born. I spent many months scouring the Internet, in a sea of calls, and emails to find answers. My intention wasn’t to just create a resource hub. I wanted to extend a lifeline for families like ours, navigating the uncharted waters of cerebral palsy. My call to action was to be of service and to illuminate the path forward, as a community.

I know I’m not the first person who has wondered where the practical information is on understanding the services my toddler was eligible for, securing the best therapies, what type of equipment would I need to order, what insurance covers, and whether there are other parents to connect with in the same boat to learn from. Health equity and building community became top of mind!

Inclusive Sol offers vital support such as a parent and caregiver support group, CP-specific resources, and opportunities for families to connect with others facing similar challenges all at no cost. Join our tribe and find your sol!

 

In solidarity,

Reena De Asis, Founder, Inclusive Sol

Empowering Families, Enriching Lives: @Inclusive_Sol